Dementia and Graphic Medicine by Das, Laboni; Venkatesan, Sathyaraj;

Rövid leírás:

Dementia and Graphic Medicine explores how graphic medicine—through memoirs by caregivers and families—offers nuanced understandings and humane representations of individuals with dementia that restore their personhood, dignity, and agency.

Hosszú leírás:

Dementia and Graphic Medicine explores how graphic medicine—through memoirs by caregivers and families—offers nuanced understandings and humane representations of individuals with dementia that restore their personhood, dignity, and agency.

Dementia, a neurodegenerative condition, often reduces individuals to their impairments, overlooking their personhood. This book challenges this, critiquing the influence of mind-body dualism, biomedicine on personhood, and the institutional dynamics that perceive those living with dementia as a "living death." It examines the transformative potential of graphic medicine in enabling dementia caregivers to visually articulate their interpretations of the complex experiences of individuals with dementia. Utilizing Tom Kitwood’s concept of personhood as a framework, the study uncovers a diverse range of subjective experiences and proposes an alternative to the biomedicalization of dementia, promoting a more compassionate and humanistic approach to caregiving. Additionally, it investigates how non-medical conceptualizations and alternative social responses to dementia challenge existing hierarchical models and stereotypes in dementia caregiving.

Bridging dementia studies, graphic medicine, and health humanities, this work provides scholars, practitioners, and caregivers with innovative insights for compassionate understanding, inclusive care, and social change. The book will also be suitable for readers in visual studies and narrative medicine.

“In vital contrast to the existing published literature exploring dementia and graphic medicine, which relies on close reading of a single graphic memoir, Das and Venkatesan have expanded their view by close reading six such memoirs, offering insight into a range of experiences with one of the most feared, and misunderstood, health conditions. By synthesizing varied patient, caregiver, and provider experiences, they offer critical insights into the failings of dementia care and leave the reader with ideas for future action. This is graphic medicine's strength on display: nuanced scholarship that, rather than ending with a stalwart conclusion, encourages the reader to action.”

- Matthew N. Noe, Lead Collection & Knowledge Management Librarian, Harvard Medical School, Harvard University

“Under the crush of medical neoliberalism, how is any ailment, particularly such a destabilizing and stereotyped one as dementia, able to maintain the human whose mind has become unrecognizable? Perhaps, as Venkatesan and Das boldly posit, one answer is through the potency and flexibility of visual storytelling: In a protean field, genre, tool, and movement like Graphic Medicine, a new and adaptive reality can be crafted for those individuals whose lives have become tangled and whose loved ones seek to restore their family tapestry. In the pages of comics, they can remain seen.”

- A. David Lewis, Associate Professor of English and Health Humanities, MCPHS University

“Anyone who has dealt with family members with dementia will find relief, support and even inspiration in this volume. Dementia and Graphic Medicine offers a critique of neoliberal medical care fueled by an inspiring new approach to dementia.  With their portrait of person-centered care grounded in the visual/verbal medium of comics, the authors chart a path for a more humane approach to dementia.”

- Susan Squier, Brill Professor Emerita of Women’s, Gender, and Sexuality Studies and English, The Pennsylvania State University

“In Dementia and Graphic Medicine, Laboni Das and Sathyaraj Venkatesan illuminate a profoundly important and too-often-misunderstood subject with sensitivity, intelligence, and grace. Through a nuanced analysis of graphic memoirs and verbo-visual storytelling, they dismantle reductive tropes of dementia as “living death” and instead reveal the fullness of lives still rich with meaning, connection, and creativity.

This book is both scholarly and deeply humane. It expands the field of graphic medicine by demonstrating how images and words can coalesce to restore dignity and personhood, particularly within systems that so frequently erase them. The authors invite us to see differently—to witness the person within and beyond diagnosis—and in doing so, they remind us that visual storytelling can be an act of care in itself.

Dementia and Graphic Medicine is an essential contribution to health humanities and to our shared understanding of what it means to live, to remember, and to accompany others through the fragile, luminous terrain of aging and illness.”

- Maureen Burdock, author of Queen of Snails: A Graphic Memoir and Sleepless Planet: A Graphic Guide to Healing from Insomnia

Tartalomjegyzék:

Introduction, 1. Picturing Illness: A History of Comics in Medicine, 2. Public Expressions of Dementia: A Critical Analysis, 3. “The Person Comes First”: Person-centered Care Approach, 4.  “The Beatification-incarceration Spectrum”: Empowering Dementia Through Positive Verbo-Visuals, 5. “A Constant Sense of Going Back to Square One”: Impact of Medical Neoliberalism on Dementia, Conclusion, Index