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  • Interdisciplinary Pediatric Palliative Care

    Interdisciplinary Pediatric Palliative Care by Wolfe, Joanne; Hinds, Pamela S.; Sourkes, Barbara M.;

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    Beszerezhetőség

    Becsült beszerzési idő: A Prosperónál jelenleg nincsen raktáron, de a kiadónál igen. Beszerzés kb. 3-5 hét..
    A Prosperónál jelenleg nincsen raktáron.

    Why don't you give exact delivery time?

    A beszerzés időigényét az eddigi tapasztalatokra alapozva adjuk meg. Azért becsült, mert a terméket külföldről hozzuk be, így a kiadó kiszolgálásának pillanatnyi gyorsaságától is függ. A megadottnál gyorsabb és lassabb szállítás is elképzelhető, de mindent megteszünk, hogy Ön a lehető leghamarabb jusson hozzá a termékhez.

    A termék adatai:

    • Kiadás sorszáma 2
    • Kiadó OUP USA
    • Megjelenés dátuma 2022. május 31.

    • ISBN 9780190090012
    • Kötéstípus Keménykötés
    • Terjedelem624 oldal
    • Méret 224x282x38 mm
    • Súly 2000 g
    • Nyelv angol
    • 192

    Kategóriák

    Rövid leírás:

    Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. It is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work.

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    Hosszú leírás:

    Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. The field of palliative care is based on the fundamental principle that an interdisciplinary team is optimal in caring for patients and their families throughout the illness trajectory. The text integrates themes including goals of care, discipline-specific roles, cultural and spiritual considerations, evidence-based outcomes, and far more. It emphasizes the value of words and high-quality communication in palliative care. Importantly, content acknowledges challenging periods between team members, and how those can ultimately benefit team, patient, and family care outcomes. Each chapter includes the perspective of the family of a seriously ill child in the form of a vignette to promote care team understanding of this crucial perspective. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. Interdisciplinary Pediatric Palliative Care is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work.

    Advance Praise for Interdisciplinary Pediatric Palliative Care, Second Edition

    "This new edition is as much a testament to pediatric palliative care's remarkable evolution as a field as it is a quintessential playbook for providing the high-quality holistic and compassionate care that families with seriously ill children desperately want. Every page thoughtfully weaves together how interprofessional teams can contribute collaboratively to learning about and supporting the preferences, needs and priorities of the precious patients and families in their circle of care. It is a must read for all practitioners to enhance their palliative care understanding, appreciation and ability as a foundation for optimizing quality of life in practice." - Rebecca Kirch, JD, Executive Vice President of Policy and Programs, National Patient Advocate Foundation

    "This book offers a truly contemporary and comprehensive view of the entire field of pediatric palliative care. The focus on social determinants of health, cultural humility, and disparities in care could not be timelier, and the section highlighting conflict and conflict resolution should be required reading. The continued and purposeful inclusion of interdisciplinary clinicians in producing each chapter models the palliative care team itself-an approach in which all voices are necessary as we seek to provide the most compassionate care possible." - Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM, Associate Professor of Anesthesia, Medical Director, StarShine Hospice and Palliative Care, Cincinnati Children's Hospital Medical Center

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    Tartalomjegyzék:

    Section I Setting the Stage
    Chapter 1 The Language of Pediatric Palliative Care
    Joanne Wolfe, Pamela S. Hinds, and Barbara M. Sourkes
    Chapter 2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US: An Evidence Base Emerges
    Bryan Sisk, Kimberley Widger, and Chris Feudtner
    Chapter 3 Children's Voices: The Experience of Patients and Their Siblings
    Anna C. Muriel, Abby R. Rosenberg, Barbara M. Sourkes
    Chapter 4 Settings of Care
    Moshe Cohn, Emily Johnston, and Julia McBee
    Chapter 5 Cultural Humility, Social Determinants, and Disparities in Pediatric Palliative Care
    Danielle Jonas, Alexis Morvant, and Sara Munoz-Blanco
    Chapter 6 Program Development
    Tammy I. Kang, Daniel P. Mahoney, Meaghann S. Weaver, and Stacy S. Remke
    Chapter 7 Interdisciplinary Education and Training
    Katharine E. Brock, Jennifer Hwang, Marsha Joselow, Blyth Lord, Janet Duncan, and Deborah A. Lafond
    Chapter 8 Quality in Pediatric Palliative Care
    Conrad Williams IV, Amanda L. Thompson, and Kathie Kobler
    Section II Relationships and Communication
    Chapter 9 Relationships with Children and Ensuring Their Voices in Decision-Making
    Karen Ron-Li Liaw, Becky Lois, Julia McBee, and Erin Collins
    Chapter 10 Family Experience and Relationships
    Kim Mooney-Doyle, Meghan L. Marsac, Elissa G. Miller, Janet A. Deatrick, and Melissa A. Alderfer
    Chapter 11 Team Relationships
    Michelle R. Brown, Jody Chrastek, and Kris Catrine
    Chapter 12 Witness to Suffering: The Clinician Experience
    Barbara M. Sourkes, Stephen Liben, and Danai Papadatou
    Chapter 13 Practical Aspects of Palliative Care Communication
    Lindsay Ragsdale, Tessie October, and Caitlin Scanlon
    Chapter 14 Advance Care Planning Along the Care Continuum
    Jonathan Mullin, Rachael Burgess, and Justin Baker
    Chapter 15 Anticipatory Grief and Bereavement
    Jennifer M. Snaman, Terrah Foster Akard, Sue E. Morris, and Lori Wiener
    Chapter 16 Resolving Conflicts in Pediatric Palliative Care
    Robert Macauley, Jody Chrastek, Amie Brandtjen, Harvey Cohen, and Thaddeus M. Pope
    Section III Easing Suffering
    Chapter 17 Psychological Symptoms
    Chase Samsel, Kathleen Perko, Lori Wiener, and Maryland Pao
    Chapter 18 Existential Distress and Suffering
    Elisha Waldman and Mark Bartel
    Chapter 19 Neurological Symptoms
    Shih-Ning Liaw, Jenna E. Freitas, and Julie Hauer
    Chapter 20 Pediatric Delirium in the Palliative Care Setting
    Paula Tran, Jeffrey Moss, Eunice Koh, Katherine Ort, Richard J. Shaw, and Michelle Goldsmith
    Chapter 21 Fatigue
    Christina Ullrich, Shana Jacobs, and Pamela S. Hinds
    Chapter 22 Sleep and Circadian Rhythms
    Toluwalase A. Ajayi, Eric S. Zhou, and Valerie E. Rogers
    Chapter 23 Prevention and Treatment of Pain in Children with Serious Illness
    Stefan J. Friedrichsdorf, Lauren Heathcote, Michael Sangster, Donna Eull, and Amber Borucki
    Chapter 24 Respiratory Symptoms
    Rose Sharpe, Megan Jordan, Raymond Barfield, Sarah Gall, Margarita Bidegain, Kristen Lakis, Renee Bartle, and Emily Layok
    Chapter 25 Gastrointestinal Symptoms
    Kevin Madden and Margaret M. Mahon
    Chapter 26 Dermatologic Conditions and Symptom Control
    Kimberly A. Bower, Julie Good, Anke Reineke, Cristina Gordon, and Michele R. Burdette-Taylor
    Chapter 27 Easing Distress When Death Is Near
    Debra Lotstein and Rachel Rusch
    Section IV Illness and Treatment Experience
    Chapter 28 Prenatal and Neonatal Palliative Care
    Christy Cummings, Anne Sullivan, Lauren Cramer, and Renee Boss
    Chapter 29 Children with Complex Chronic Conditions
    Jori Bogetz, Christopher A. Collura, and Christy Torkildson
    Chapter 30 Advanced Heart Disease
    Melissa K. Cousino, Chelsea Heneghan, and Elizabeth D. Blume
    Chapter 31 Cystic Fibrosis and Other Childhood Lung Diseases
    Elisabeth Potts Dellon, Jessica Goggin, and Elliot Rabinowitz
    Chapter 32 Solid Organ Transplant
    Timothy Klouda, Debra Boyer, Lynne Helfand, Michael McCown, Nicholas Purol, and Dawn Freiberger
    Chapter 33 Oncological Illnesses
    Sarah McCarthy, Kimberly A. Pyke-Grimm, and Angela M. Feraco
    Chapter 34 Hematologic Symptoms
    Barbara Speller-Brown, Jillian Campbell, Allistair Abraham, Priyal Patel, Lisa Humphrey, and Jennifer Webb
    Chapter 35 Primary and Acquired Immune Deficiency Disorders
    Wei Li Adeline Koay, Natella Rakhmanina, Megan Wilkins, Sarah Matthews, and Ami Doshi

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