Manufacturing My Miracle
One Woman’s Quest to Create her Personalized Gene Therapy
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Product details:
- Publisher Bloomsbury Publishing (UK)
- Date of Publication 18 September 2025
- Number of Volumes Hardback
- ISBN 9781538197226
- Binding Hardback
- No. of pages224 pages
- Size 218x146x20 mm
- Weight 420 g
- Language English 688
Categories
Short description:
Who lives? Who dies? Who decides? One woman's quest to save her family from a rare genetic disorder and what it means for our collective genetic future
MoreLong description:
Who lives? Who dies? Who decides? One woman's quest to save her family from a rare hereditary disorder and what it means for our collective genetic future
In Manufacturing My Miracle, Jill Dopf Viles becomes her own researcher to solve the genetic mystery that has plagued generations of her family. She discovers a link to Olympic hurdler Priscilla Lopes Schliep and, as gene therapy costs $4.25 million per treatment, she miraculously develops her own for a mere $1,500. With her personalized cure stored in her freezer, the most critical decision becomes: should she risk her health to save her family or wait for an industry unlikely to prioritize ultra-rare diseases?
Table of Contents:
Introduction: Olympic-sized Dreams
Chapter One: Appalachian Medicine
Chapter Two: Witches' Fingers Grab my Legs
Chapter Three: Captured
Chapter Four: Loss of Control
Chapter Five: Killer Instinct
Chapter Six: Un-Walking
Chapter Seven: Contains Photo: Do Not Bend
Chapter Eight: Deliberations
Chapter Nine: Responsible Biohacker
Chapter Ten: Going to Pakistan
Chapter Eleven: Breaching the Ivory Tower of Medicine
Chapter Twelve: From Death to Life
Notes
Bibliography
Index
About the Author