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  • Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being

    Amyotrophic Lateral Sclerosis by Pagnini, Francesco; Simmons, Zachary;

    Understanding and Optimizing Quality of Life and Psychological Well-Being

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      • Publisher's listprice GBP 61.00
      • The price is estimated because at the time of ordering we do not know what conversion rates will apply to HUF / product currency when the book arrives. In case HUF is weaker, the price increases slightly, in case HUF is stronger, the price goes lower slightly.

        29 142 Ft (27 755 Ft + 5% VAT)
      • Discount 10% (cc. 2 914 Ft off)
      • Discounted price 26 228 Ft (24 980 Ft + 5% VAT)

    29 142 Ft

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    Product details:

    • Publisher OUP Oxford
    • Date of Publication 22 February 2018

    • ISBN 9780198757726
    • Binding Paperback
    • No. of pages300 pages
    • Size 235x157x15 mm
    • Weight 452 g
    • Language English
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    Short description:

    This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.

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    Long description:

    Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disorder with a progressive and fatal course, with no known medical therapies that can reverse the disease or halt its progression. Palliative care is the mainstay of disease management, aimed at maximizing Quality Of Life (QOL) for the patient and caregiver. Clinicians caring for patients with ALS need to understand complex psychological issues in the patient and caregiver, including depression, anxiety, hopelessness, and wish for hastened death (physician-assisted suicide). They also need to confront the psychological implications of rapidly advancing genetic research, the impact of cognitive and behavioural dysfunction in a sizable minority of ALS patients, and caregiver burnout. Healthcare providers can optimize care by better understanding not only these factors, but by learning how to facilitate their management with problem-solving, coping techniques, and with psychologically-based approaches such as mindfulness and other non-pharmacological approaches aimed at maximizing QOL.

    Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being provides a detailed review and evaluation of ALS, presented in a comprehensive and integrated fashion. The book achieves this through detailed and up-to-date information about the current state of knowledge in this field. It also offers new insights regarding future directions for research. This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.

    International Association for Hospice and Palliative Cares Book of the month

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    Table of Contents:

    Psychological research in ALS: Past, present and future
    Quality of life in ALS: What is it, and how do we measure it?
    Psychological morbidity in ALS: Depression, anxiety, hopelessness
    Mindfulness and mindlessness and ALS
    Complementary and alternative medicines and ALS
    Genetic counselling: Psychological impact and concerns
    Resilience and coping strategies in ALS patients and caregivers
    Cognitive and behavioural dysfunction in ALS and its assessment
    The impact of cognitive and behavioural change on quality of life of caregivers and patients with ALS and other neurological conditions
    Neglected needs: Sexuality, intimacy, anger
    "They embrace you virtually": The internet as a tool for social support for people with ALS
    Investigating the psychology of assistive device use in ALS: Suggestions for improving adherence and engagement
    End of life: Wishes, values, and symptoms and their impact on quality of life and well-being
    Hastened-death: Physician-assisted suicide and euthanasia in ALS
    Bulbar dysfunction in ALS: Psychological implications
    ALS caregiver quality of life and psychological implications
    Providing holistic care for the individual with ALS: Research gaps and future directions

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